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About us

HOPE London started in January 2012 after it was identified by a parent of a child with complex epilepsy that there were no support groups in the Greater London area for families affected by epilepsy. Having a child with epilepsy as well as any other additional needs can be extremely isolating and overwhelming and can affect the whole family.

HOPE London provides a safe space for families to socialise, reduce isolation, build relationships, share information, access support and guidance and most importantly for children to have some fun!

With the support of our volunteers, children are encouraged to explore the various facilities we have available. These include a soft play room, bouncy castle, craft tables and adapted playground with climbing frames, trikes and various outdoor games.

HOPE London is run by parents and carers of children with epilepsy who have over the years gained a lot of knowledge and experience regarding the care of their child and the support that is available to families. We provide an information table with lots of relevant literature for parents and carers to take home and read at their leisure.

It can often be difficult for parents and carers to get the support they need with managing their child’s condition. At HOPE London, families can access advice and support from our Epilepsy Specialist Nurses Louise Burke and Tessa Walker.

Also attending our sessions is Trustee Lesley Haigh. Lesley is the Community Matron for special needs in Barnet. She also carries out epilepsy awareness training for professionals working with children with epilepsy

Our sessions are open to anyone who wishes to travel, so, if you are in London or surrounding counties, please come and join us. Please check our events page for the dates of our future sessions.

We look forward to meeting you!

 

Please note;

The HOPE Team are volunteers.

100 percent of all donations to HOPE go directly to the charity.

Hope sessions

Please see below a list of all the HOPE sessions for 2017. We hope you can make it. All HOPE family sessions are held at Oakleigh School, Oakleigh Road North, Whetstone, London. N20 0DH. Nearest tube stations are Arnos Grove and Totteridge and Whetstone. Dates for the sessions are below and run from 2pm - 4pm:  

2017

25th June - Silly Olympics, Epilepsy safety talk

17th September - Legoland

15th October - Treasure hunt, Halloween costume party

19th November - Team games and quiz

17th December - Christmas party

 

We look forward to seeing you all.

Scott Liddle - Founder

I set up HOPE London as my wife and I were struggling with our son’s seizures. We were feeling extremely isolated and overwhelmed. We knew that there must be families in a similar situation to us but where were they? We felt we would benefit from meeting other families that had a child with severe epilepsy. Our friends were extremely sympathetic but they did not understand how we were really feeling. When I contacted all the national epilepsy charities I was amazed to find that there was no support group for families affected by epilepsy on London. When campaigning for an epilepsy nurse at Barnet and Chase Farm hospital I had garnered quite a lot of interest for a support group from parents who supported the campaign, so knew that there was a need for HOPE London. I am pleased to say that HOPE London is now well established and we get new families attending all the time.

HOPE London to me is a haven for children with epilepsy and their siblings to enjoy themselves and meet other kids in a similar situation. Hope is a place without barriers, where children, parents and carers can be themselves and know that the person they are talking to understands without judgment.