Menu

Useful Links

Young Epilepsy

www.youngepilepsy.org.uk

www.facebook.com/youngepilepsy

Young Epilepsy in Lingfield is a residential special school/college for young people with complex epilepsy and other neurological conditions.  Their Childhood Epilepsy Centre offers diagnostic assessment and rehabilitation services.

Young Epilepsy campaign for improvements in health and education for all under 18's with epilepsy in the UK.  The Childhood Epilepsy Information Service provides information and training about epilepsy for parents, young children and professionals, including study days and family workshops.

 

The Daisy Garland Charity

www.thedaisygarland.org.uk

The Daisy Garland Charity works exclusively to help children with drug resistant epilepsy.  The charity funds Ketogenic Dieticians in NHS hospitals.  It gives grants for SATs/epilepsy monitors for use in the home.  It awards small one-off grants for 'special needs' equipment.  It provides family support.

 

Matthew's Friends Charity

www.matthewsfriends.org

www.mfclinics.com

www.facebook.com/matthewsfriends

Matthew's Friends Charity is dedicated to the use of the Ketogenic Diet to help children and also adults with drug resistant epilepsy.  The charity provides the latest research and information on dietary therapies to help those that are failing medication.  The work of the charity involves Ketogenic research, family support and professional education and training.

 

http://autism.sesamestreet.org/

http://www.retailmenot.com/blog/sensory-overload-while-shopping.html

http://www.do2learn.com/

http://www.yourstoragefinder.com/moving-with-special-needs-kids

http://www.homecity.com/creating-a-home-where-your-child-can-thrive-with-a-disability

https://www.justgreatlawyers.com/estate-planning-for-parents-of-children-with-autism

 

Anti Suffocation Pillow Service

Hope for Paediatric  Epilepsy London

Anti suffocation pillow criteria:

Hope for epilepsy London is happy to supply pillows to young people with epilepsy living in the London area for free, the criteria and guidelines below explain the criteria for gaining a pillow.

  • The child must have a diagnosis of epilepsy excluding for example Non-epileptic attack disorder as a singular diagnosis, febrile convulsions in under 5 years olds. A clinic letter from your doctor should be included in the email you send to us (a photo of the letter is sufficient if the diagnosis can be read clearly).
  • 1 pillow can be claimed for each young person with epilepsy.
  • The child must have had seizures in the last year to qualify for a pillow.
  • There has to have been at least 1 seizure previously at night in the history of the child’s epilepsy.
  • The child must be 19 years and under.

Please send us your details and attach your clinic letter scanned or photographed,  we will aim to reply to you and give you confirmation within a month of you submitting your request, if you do not hear after month please contact us on : info@hopeforepilepsylondon.org.uk

Anti-suffocation pillows are available to buy for around £35 to £45, we do have a limited supply of pillows available and cannot always meet demand. The pillows are available at http://www.sleep-safe.co.uk/ and other sites such as amazon and you can search for products on any search engine.