It is a huge honour to take up the roles of patron and trustee for HOPE London. A genome scientist by career, I have worked on the human genome for more than 27 years, recently in epilepsy genomics. I am passionate about the impact that genomics is beginning to have in the clinic for people with epilepsy and my day job involves helping patients, clinicians, and scientists to understand both the benefits and limitations of genomic medicine. I am currently Head of Patient and Participant Engagement at Genomics England https://www.genomicsengland.co.uk
More importantly, I am the father to two children with severe cerebral palsy, one of whom had West syndrome epilepsy at eight months. I understand how important it is to have the opportunity to speak with other families about the challenges epilepsy can bring and HOPE London offers the perfect place to do just that.