USEFUL LINKS FOR PARENTS
Epilepsy charities:
Epilepsy Society promote public awareness and education through research, specialist care and support services.
Epilepsy Action provide advice, fund research and campaign for change
Epilepsy Research UK are dedicated exclusively to epilepsy research
Epilepsy sparks is a company set up by Torie Robinson to educate the public regarding epilepsy and common mental health issues associated. Epilepsy Sparks bridges the gap between patients, neurologists, and scientists.
Support for siblings of children and young people with disabilities:
SIBS support support the siblings of children and young people with disabilities.
Charities for Parents of Children with Disabilities:
CONTACT offers benefits advice for families with disabled children
REACT give grants of up to £500 for children with complx needs
Sky Badger provide help for families with children with disabilities, special educational needs.
Charities that Donate Equipment:
ESUK are a UK charity that fund Anti-suffocation pillows for adults and children. Contact Epilepsy Sucks UK www.esuk.uk.com
The John Shaw Foundation help young people with epilepsy to live safely and independently
Epilepsy charities that donate Seizure Alert Devices:
The Daisy Garland Foundation
donate monitors to children and young people with drug resistant epilepsy.
Click the link for the Daisy Garland night-time breathing (SATs/epilepsy) monitor programme
https://www.thedaisygarland.org.uk/forms/monitor-grant-enquiry-form
Dravet Syndrome UK
donate seizure monitors for children and young people with Dravet syndrome.
Click the link for the monitor application form.
https://www.dravet.org.uk/apply-for-grants/seizure-monitor-fund/
Courses for Parent:
FREE EPILEPSY ACTION ONLINE COURSE FOR PARENTS TO LEARN ABOUT CARING FOR A CHILD WITH EPILEPSY
This is the link to an excellent free online course for parents of children with epilepsy, you can take
COVID 19 Support:
Click to find out how we are still supporting our HOPE families during COVID 19
.